ea0078OC9.5 | Oral Communications 9 | BSPED2021
Thakrar S
, Cheung MS
, Johnson A
, Katugampola H
, Manzur A
, Muntoni F
, Mushtaq T
, Turner C
, Wood C
, Guglieri M
, Wong SC
Introduction: The use of long-term oral corticosteroids in DMD leads to secondary adrenal insufficiency. The 2018 international care consensus recognizes this important issue and recommends emergency plans to be in place. Aim: This online UK-wide patient survey aims to determine the advice/education given for emergency stress dose plans and the impact of the COVID-19 pandemic in corticosteroid-treated young people with DMD. Methods...